Archive for October, 2012

5th October
2012
written by tom

It’s amazing what some thought and the falling of words into place can do.

Our Mission:

Our ultimate goal is to maximise Hannah’s chances for an independent, meaningful life. Hannah, July 2012

Toward this end, we want to make the best medical expertise available for our daughter.

Hannah has been very ably attended to by two paediatric neurologists in Singapore.

We are seeking additional opinions in order to –

  1. confirm the initial diagnosis (of “Infantile Spasms”);
  2. augment (or refine) such a diagnosis;
  3. seek more effective medication to resolve the condition and the underlying hypsarrhythmia;
  4. understand and investigate all possible causes of the condition – genetic, metabolic etc. – and to treat these where possible;
  5. explore alternative, non-traditional forms of treatment, including concurrent ketogenic dietary regimes and accelerated physiotherapy treatments;
  6. consider other, more evasive surgical solutions.